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My Main Outlet These Days: East City Art

If you are interested in my first writings about multiple myeloma, run the calendar back to January 22, 2010.

I still must check in at least every three months to be sure that my M-Spikes are under the minimum, nearly undetectable level that we want to keep them. If they start moving up, I’ll be depending on the wonderful doctors and staff at the Dr. Cyrus & Myrtle Katzen Cancer Research Center at the George Washington University Department of Medicine in Washington DC to aid and assist me in fighting the good fight.

In the meantime, these days, I’m posting mostly arts-related material (photo-essays and Q&A sessions with artists) at East City Art, a site devoted to celebrating the art and artists living and working on the east side of the Nation’s Capital. And beyond.

 

Congratulations to Calder Brannock, winner of the opportunity to join the artists associated with Conner Contemporary Art at the PULSE NYC art fair. Calder’s Camper Contemporary is currently parked at Conner Contemporary as a part of the Academy 2010 show. Look for a Wade Carey interview with Calder here around the end of July.

Calder Brannock, Camper Contemporary. Copyright Calder Brannock, Courtesy Conner Contemporary Art



Forgive me, Father, for I have not paid the attention I should to my duties here. Putting thoughts into published form is my duty. The thoughts are there. I have been remiss only in corralling them sufficiently to publish them. It has been over a month since my last posting.

My thoughts turn to rehabilitation daily. I turn over in my mind what possible set of concrete definitions I might place on that state of being: “Having Been Rehabilitated.”

It cannot only be the return of physical stamina. I might someday regain the energy sufficient to endure with aplomb the aches, pains and fatigues of chemotherapy’s leftovers while heading out to earn my daily bread for 35 or more hours a week. For a soon-to-be 58-year-old, at the crossroads of lingering chemobrain and painful peripheral neuropathy, worry about the routine signs of aging–greeted affectionately in passing by fellow aging Baby Boomers–is a big part of the problem for me.

How does one prepare for rehabilitation when one’s cohort is preparing for retirement? Retirement wants me to head in the opposite direction, to accept gradually more liberal allowances for subtle mental and physical degeneration. Will I be rehabilitated when I remember to set my watch to the correct hour, not giving or taking a time zone? Will I have been rehabilitated when, absent-minded, I no longer find myself slowing down or stopping my car at green lights? Will I know I’m ready for my close-up in the world of the unchallenged when I stop catching myself halted at intersections with no stop signs? Will I be rehabilitated when I no longer feel irresistible grogginess compelling me to nap at about 3:00 P.M. every day?

Why is any of this different from just getting old? I am confronting the unpleasant thought that I just got too old too quick because of my diagnosis and treatment for cancer.

After a joyous release from the hospital and glowing prognosis in the first month following my bone marrow transplant, my blood stopped perking up the way it is supposed to. I’m still not producing the platelets, red and white blood cells in numbers that would measure up by now to a normal arc of recuperation. “Nothing to worry about,” says my oncologist. Still, he has a reason to watch me more closely.

What is this lurking malaise camping out deep inside my body? My rich fantasy life kicks in, of course, at this point. Perhaps they’ve given me someone else’s stem cells! Obviously, I’ve lost my mind. I’d be a dead duck already if they put somebody else’s cells at random in there by mistake. Nonetheless, I will bet that all of us who have been through stem cell transplants nurture at least one or two strange dark fantasies about the death and life thereafter coursing through our bloodstreams. That phoenix rising from the smoldering ashes of our marrows can seem to be one very strange bird.

Of course I’ll do what I can to rehabilitate. Now comes the recommendation of my oncologist to try something called NeuraGel or Neuragen PN for my neuropathic pain. This smacks a little of snake oil to me but I’ll try it. I will report back after I’ve seen what it can do. A friend in California recommends that I pay attention to what Dr. Ed Bauman, M.Ed., Ph.D., has to say about cancer protection and recovery through intelligent eating choices. OK, I’ll try to do right by Dr. Bauman, too.

Still, I rise in the middle of the night with racking anxiety about the whys and wherefores. My gut churns at the thought that my doorway into rehabilitation might slam shut behind me and leave me without resources, or even without medical insurance coverage, when and if–still a pretty overwhelming case for “when” in cases of multiple myeloma–my cancer returns.

I will not talk of the American way of insurance or Obamacare or socialized medicine. My doubts and fears would be with me in any case. If I lived in France or Canada, I would still wake in the middle of the night with the same fears about my future. For now, I will content myself to attempt to lead an exemplary and conventional life. I will accept that I need a way to lose those extra pounds of middle age fat the same as ever. I will resolve to exercise more and fret less. And just get on with it.

Here I am with the happy little man inside my head who can't feel his feet.

About my feet. I am still not too clear on how it works but the multiple myeloma cancer had some deleterious effect to start with on my nerves from the knees down even before I was diagnosed. The first sign of trouble was a numbness in my right foot and a general lack of sensitivity in my legs below my knees. After I was diagnosed, the chemotherapy drugs that I took to kill off the cancer had side effects including peripheral nerve damage. 

The numbness in my face and hands has never been really bad but I cannot use a computer keyboard for very long without hand cramping and I especially cannot use my hands to write in longhand for very long at all. 

The worst damage was down in my feet. I may never get normal feeling back. If I am lucky I will get rid of the current pain caused by the damage to the nerve cells. This you may know is called  “chemotherapy-induced painful peripheral neuropathy.” A similar neuropathy is common among diabetics. My nerve damage is not caused by the destructive mechanisms of diabetes, thank God. My feet are not in danger of amputation. On the other hand I suffer similar painful symptoms. 

The milder components of the sensations are a combination of fire and ice sort of like how it used to feel when we stayed out playing too long in the snow and then came in to the warm house and took off our boots–that feeling in our feet when they were so cold we couldn’t feel them but still they tingled and felt hot inside at the same time.  

The next and stronger level is shooting, stabbing pain that comes up from the bottom of the feet unexpectedly. These sensations can come from the toes or the instep mostly but also they can seem to start from other places like the ankles and top of the foot. Another unpleasant sensation that comes up sometimes when my medications start to wear off is a kind of tearing sensation like tweezers are pulling back very thinnest layer of skin away from the tops of my baby toes and thereabouts. 

None of these painful sensations is real so I don’t get terribly upset because I know that they are all imaginary in a sense. It is just that little cartoon devils with pitchforks are subjecting me to medieval torture techniques. There is sharp pain in the moment it happens and then it is gone. The stabbing sensations are split-second kinds of things. I’m talking here only about the shooting, stabbing pains. The prickly, fire and ice in-from-the-snow stuff is constant. 

I can walk around all day if I go very slow on my feet and if I have taken the appropriate pain killers. However, I will pay the price at the end of the day if I am on my feet. There is a cumulative, wear-and-tear factor to this pain, too. The more I am on my feet the more I have to deal with the discomfort at the end of the day.  

I have to contend with the DVT (deep vein thrombosis) in my right leg, too. Multiple myeloma patients have particularly high predisposition for blood clots. Many of us should be on blood thinners for the rest of our lives. I developed my DVT during chemotherapy when the blood thinner I was taking (Coumadin) wasn’t strong enough and I developed a clot in the major vein that returns blood up from my right leg. I was switched immediately to a stronger blood thinner (Lovenox) self-administered by hypodermic needle once a day. I quickly became an expert at giving myself shots! 

As a consequence of the DVT I wear preventive compression stockings every day. I am used to them now but they are super-ultra nerdy things. At least they have them in black so I can wear them under pants without much trouble but I never appear with naked legs (maybe not a bad idea). I never wear short pants anymore. The stockings also come in a khaki-beige and an awful hospital white. None of the looks is attractive. I am going to have to reintroduce knee britches and long hose in men if I am to be able to mix in polite hot weather company in anything other than long trousers from now on. 

The flip side is that if I don’t exercise it enough my right ankle swells up like your great-aunt Tilly with the bad circulation. It’s a Hobson’s Choice kind of thing. I need to exercise by walking, etc., and it is good for me in every way. However, I end up with a lot of pain at the end of the day. Thank God for pain killers. 

I take two drugs to deal with the pain. First, I take a drug twice a day called Lyrica (pregabalin). It is prescribed for the treatment of fibromyalgia and diabetic nerve pain. My cancer/chemo nerve damage pain is close enough to diabetic nerve damage so that it helps me, too. The Lyrica calms down the shooting stabbing pains but it doesn’t really do much for the constant prickly fire and ice sensations. The second drug I take is not on a regular twice a day basis. It reduces the prickly fire and ice sensations to a dull numbness. That drug is Oxycodone, the synthetic equivalent of Codeine. Since it is a narcotic I try to be sparing in its use. They say at the cancer center, “Nobody needs to be in pain.” They mean it, thank God. 

I cannot relieve myself completely of this weird foot pain but the combination of drugs dulls it down to a level that I can live with. Meanwhile, I am thinking about consulting an acupuncturist. They say acupuncture can be very effective for nerve damage pain. What the hell, I have nothing to lose. I will keep my receipts for tax time next year. I don’t think I can get my medical insurance to reimburse for acupuncture. We shall see. 

As far as further treatments go, I’m in complete remission for an indefinite period of time and won’t be undergoing any chemotherapy treatments. I will continue to see the doctors to test my blood, monitor my kidney damage and stay vigilant about the untimely aging that this whole thing has put my body through. 

One side effect that I haven’t had to do anything about yet is a cataract developing on my right eye, probably because of the heavy doses of steroids I had to take during my chemotherapy. I don’t notice it much except at dusk. I plan to see a specialist sometime this year to see how soon I have to get serious about surgery. It doesn’t seem to be progressing very fast yet. Cataracts grow exponentially. At some point it will speed up and I will have to get it removed. 

Never a dull moment.

I still am unable to admit without hesitation that I have had cancer so it is just as hard to admit to myself that I am in remission. I have been approved for Social Security Disability Insurance benefits. This makes it official that I must take the next couple of years to try to rebuild myself into a functioning member of society. This forces me to admit not only that there is damage that cannot be reversed but that there is rehabilitation to be achieved. In remission I am standing apart from the dutiful patient, past the point where I must do no more than follow doctor’s orders in all things to get well. Remission is a paradox. I now am well and yet am not better.

Jesus falls for the first time

Jesus falls for the first time

It is Easter morning. I am awake too early and battling something like depression. This thing seems formed out of some shadow effect, a delayed-release capsule of recriminations that should have started on Good Friday and built to its climax yesterday as good Christians contemplate their sins on Holy Saturday. My hour of doubt and shame comes this morning as I wonder about what makes me worthy to live and prosper another year in the Christian calendar.

My morning is not without sensations of the miracle of redemption. I am mindful of the miraculous good things that have come to pass for me and for those I care about in the past year. However, I am troubled by the hunger for an escape into religious ecstasy or for some form of deus ex machina that I see all around me. We Americans are desperate for deliverance from the gigantic dung heap on which we sit. What a surprise to discover the raven that has been rap, rap, rapping on our chamber door for over a hundred years is proclaiming, “Nevermore,” now in a way that transcends even Poe’s glib and bitter American vision.

I woke up afraid for my new life in remission. I was afraid that too many others of my stripe, nationality, ethnicity, social compact, race/religion/creed/color have decided to head for the lifeboats without regard for the women and children. The Titanic sank in such memorable style only because it sank slowly like the passing of the Victorian golden age of aristocracy itself. When panic ensues it is every man for himself. Witness the sinking of the Lusitania.

For what new religiosity or social change do I militate in my “younger generation” way at the age of fifty-seven? What has been or can be accomplished? On Easter morning, why do I deserve to live in remission, without pain, without unnatural fear, without the pall of shame cast over my brow from day-to-day? My cancer is not my conscience but it fights hard to pretend so.

I cannot progress without an honest assessment of the damage. I must relearn several alarmingly basic things. 1) I must learn how to walk with constant discomfort to pursue sufficiently a normal daily life and to keep my metabolism going strong enough to discourage any further muscle wasting. I must in fact learn how to rebuild muscle mass in my legs and the rest of my body. 2) I must relearn the map of my mind sufficiently to relocate myself in a map of the world, to sense and remember the cardinal directions, to follow more than two steps in any set of verbal instructions. I cannot separate out the cause and effect for this aspect of my disability, whether it is nerve damage in my brain or cataclysmic changes in my daily pattern of behavior. I only know that I have fallen far out of step with my former mental abilities. 3) I must learn a new profession that doesn’t kill me faster than it provides my daily bread.

I have been redeemed by the miracles of modern science. Thus healed, I am placed back in a society that longs to have its sins justified by some horrifying apocalypse. I am certain that my heart and compass are touched by the better angels of our nature. If Abraham Lincoln thought in 1861 that we could make it through the Civil War, I don’t know why I cannot forge ahead thinking that I can succeed on my road to recovery in the age of Obama-pocalypse now. In the time that I have been spared to live I cannot brook the slough of despond.

Now is the winter of our discontent made glorious summer by this SSN of York. I am waiting to hear if I will be approved for Social Security Disability Insurance payments, and waiting to see if my blood pressure will stabilize in the high-normal range now that I have stopped taking my hypertension medication.

Dr. Tabbara suggested that it would be better in my case to maintain a slightly high BP rate rather than the very low end BP that I developed after my last blood test and check up.

Almost immediately after my last cancer center visit (see previous post), I developed a kind of 24-hour intestinal bug likely from something I ate. I threw up for a day and then attempted to rehydrate myself for two days before I was back to semi-normal. My blood pressure plummeted to about 90 over 60. It didn’t improve as I regained my appetite, water and electrolyte balances. Thus, no more Benicar HCT for the time being.

I’m now toodling along at about 128 over 85. That’s seems just about what the doctor wants. I’ll have to keep tabs to make sure it doesn’t creep up. My BP was about 140 over 95 before I started taking corrective meds for it. That’s not a terrifying rate but it was high enough for my general practitioner to start me on the pills.

Because my concentration and memory retention have been so much affected, I am trying to apply a new resolution that I must finish at least one thing every day. It doesn’t matter what that thing is. It may be a small task or a large undertaking.

Yesterday I succeeded in finishing the repair of the lights over the dining table. The transformers for the 12 volt cable lighting system burned out. Replacements were purchased some time ago but then were buried in the junk piles that impact our living spaces. Ted found the transformers in a bag under the stairs on Tuesday. The electrician came out yesterday (Wednesday) and replaced the transformers. We then replaced all the burnt out bulbs. Voila! The dining table is illuminated once more.  

I’m looking at myself in the mirror in this abundant new halogen light and wondering when I will grow hair on my head again. How long must I wander the earth as bald as a turnip? How long must I shiver before there is any insulating fuzz up there? I can feel a stubble that might be called fuzz but it has been there for weeks without seeming to grow out.

Patience is a virtue, said my father. I will attempt to be patient for another week but then I will investigate alternative skull decoration. Perhaps a tattoo of the numeral six-sixty-six? Not very original, I admit. Blond go-go wig? Hmm.

I am happy to report that my platelets are back with a bang this week. I had hoped that the numbers would come up from 47,000 to something around 90,000-100,000. That increase represents a doubling of the platelet count. When I saw the CBC test results, I was blown away by a platelet count of 136,000! The normal range starts at 155,000. I’m so close to normal at this point, it’s really not worth remarking. 

This platelet comeback means that I must resume daily injections of Lovenox. In a slightly absurd twist, I must limit the liabilities I face because of too much of a good thing. My blood must stay a little thinner than normal to prevent new thrombosis (blood clots). Administering Lovenox (instead of the weaker standard treatment, Coumadin a.k.a. warfarin) does the trick for me. 

My red blood cell count is down slightly from last week. I thought this was not good news but the doctor said that it was not significant. He explained that I would see minor variations in my blood cell counts and production for some time as my bone marrow continues to heal and resumes normal production. 

My kidneys show damage caused by the cancer before chemotherapy reduced the protein spillage that clogged my kidneys. There is hope that my kidneys may improve over time as long as the myeloma “M-spikes” don’t recur. My serum creatinine level was 2.34 this week. The normal range tops out at 1.79. A higher number shows stress on the kidneys–the result of some form of damage. The good news is that my creatinine level used to be higher. It was over 3 a few months ago. We keep our fingers crossed and hope this means a trend toward ultimate repair in the kidney department. 

More than anything else, I was pleased this morning when the doctor said that he doesn’t need to see me until the beginning of April. In the meantime, I am free to travel south in search of warmer weather. Ted and I plan an odyssey to Florida soon. We’re thinking about stopping in Charleston, South Carolina, and Savannah, Georgia, to take in the food scenes and the historical city centers. We are instructed also to tour St. Augustine, Florida, and we will obey. (Yes, M.T., dearest…) 

My doctor suggests that there is no reason for me to avoid air travel. To avoid DVT (deep vein thrombosis), I simply must continue to inject Lovenox, wear compression stockings, and stay as physically active as possible while on the plane. Oh yes, I also must avoid people who show signs of disease (don’t sit next to someone who is coughing and sneezing). Well, duh! 

This excellent news broadens my horizons dramatically. I hope that we may visit friends and family in farther-flung climes later this year. 

Ex-bmt, gwm seeks relationship w hot sunset, wet toes. No fogies, please. All others apply within.

Orange blossom on snow in sunroom
When you can live in the fragrant subtropical foreground, why on earth would you want to venture out there into the hostile, freezing background?

 

I have been out of the hospital long enough. I can no longer avoid rehabilitation to something like normal life. My inner stem cell transplant patient draws me back into bed-bound deshabille. I decline to venture out, except to visit doctors.  

I have a fear of fear itself. (Thank you, Mr. Roosevelt.) It must be commonplace for recuperating patients to feel at sea once the discipline of medical attention falls away: Free will becomes the only determinant of daily behavior.  

My free will is behaving in a distinctly retrogressive manner. I desire to do nothing, to stay in bed as long as possible and to venture out of the house only when absolutely necessary.  

I know the path to normality lies in a slow, steady renunciation of this daily pattern, but I am harried by further disincentives. I confront opressive snowfalls, bitter cold air, howling winds and the general irascibility of Washington society as a result of the aformentioned phenomena.  

Here in my warm redoubt, the dwarf orange and lemon trees are in bloom. NPR talk radio provides constant if not always convivial companionship. From the security of my seat at the dining room table, I have telephone and Internet connections to friends and family. Sitting in front of my laptop PC, this tightly defined hamster wheel of a life is limited but safe. Not so safe is the street, the world of men and their snuffling, germy ways.  

Nonetheless, I compel myself to leave the house for at least a short while each day. Yesterday, I had the comfort of a doctor’s appointment. Today, I had a lunch date that stretched into a movie matinee date. (I saw “Avatar” in 3D. Huzzah and hosannahs.) Tomorrow, on Saturday, will I visit the the weekly farmers’ market at Eastern Market? Will I see what I can see and buy what I can buy to restock our ever-emptying refrigerator? 

I don’t particularly need to do this. It is rather like “make-work” therapy in my program of rehabilitation. How many can count themselves lucky enough to have friends who leave freshly braised osso buco on the doorstep? Friends like Lisa McCormack provide a perfect excuse to remain averse to the hard, cold necessity of fending for myself. That necessity is not pressing in upon me–not quite yet, at any rate. I am happy for that. 

Harder to dispel is a different sadness. I’m mourning something long gone but only now unforgotten. I stop to think what it’s about and conclude that I simply feel sorry for myself because I’m not the man I used to be. I’m not even the stem cell transplant patient I used to be. I am no longer immersed in a reassuring full-time surround-sound chamber of doctors and care-givers. I’m on my own for the first time in a long time. It is the calm after the storm. Painful peripheral neuropathy seems to be here for keeps, and I’ll probably never again have the mental power of concentration to be able to multi-task like I used to, but I’m no longer braving brand new side effects tied to fighting cancer.  

I sought the care of a psychiatrist after my initial diagnosis. I have continued to depend on him to help guide me through these dark waters. With that guidance, I sense what I might have ascribed to self-pity as self-compassion instead.  

I seek to soothe my own rattled state. I feel better when I cry for myself. The tears are not born of despair. They are born of a luxury of warm feelings, a wealth measured by the size of my own heart. 

I cry a little and I feel better. What then is left to do? I must get out of this delicate, bedraggled post-remission peignoir and into some sensible skivvies more suitable to self-assured rehabilitation. Let’s see how that goes, shall we?

It's not Kojak, really. Hmm, what is it then, I wonder? My eyeglasses make the transition quite well, I think.

After my release from the hospital on Tuesday, following my successful autologous stem cell transplant, I nose-dived into the warmth of my own beloved bed where I slept the sleep of hibernating grizzly bears for nearly two days.

The swelling in my feet from three weeks of IV hydration did not disappear overnight as I had hoped. I instead was hobbled by acute nerve pain in my right foot. You know that nerve, I think. It runs from your big toe, up your instep, past your ankle and up your leg. I could barely walk as a result of the pain radiating from this rediscovered nerve. The very idea of wiggling my big toe sent waves of discomfort straight up my leg. I survived by sleeping and taking pain killers while very carefully using pillows to elevate my leg above my heart to promote drainage in the swollen tissue resting on the top of my right foot.

On Friday, I could walk well enough to report to the doctor’s office for a new CBC (blood) test and any treatment or advice that might follow. It was a pleasure to see the old gang in the Cyrus and Myrtle Katzen Cancer Research Center. There were some new faces but I knew most of the nurses from my months of chemotherapy in 2009. I even received several compliments on my new hair-free look. “Crafty,” one nurse said. That was my favorite.

The CBC returned untroubling, predictable results. My platelets remain undesirably low but they are headed slowly up. My red blood cells are inching up, also, but are still in the asymptomatic anemia range. My white blood cells are proliferating very well. We likely owe the excellent white blood cell numbers to daily shots of Neupogen.

Dr. Tabbara recommended that I walk more, not less, on my afflicted foot. He suggested that the pain was a kind of aftershock to three weeks in bed with minimal daily exercise. He was right. By today, the pain index is down to an acceptably low ache (a 2 or 3). I slept last night without pain medication.

Today also marked my first venture out as wheel man for Ted on our routine Saturday run to the laundry and liquor store. These shops are located a few doors apart on Pennsylvania Avenue, Southeast. There is never a parking space and the police regularly patrol and ticket double parkers. I was able to negotiate the snow clogged streets with aplomb. Noting with nimble profanities that our own carefully dug out space had been taken while we were gone for those 15-20 minutes, we parked in another dug-out space available in our block. If you can’t lick ’em, join ’em, I guess.

The etiquette of reserved dug-out parking spaces (afforded to those who perform the back-breaking task of digging out during snow emergencies) is not well known in our neighborhood. It is unlikely that the etiquette is known or shared widely anywhere in Washington. I understand the etiquette because Ted and I once lived in Somerville, Massachusetts. Entertaining the idea of pirating another person’s carefully dug out spot in Somerville is the same as comtemplating a request for summary execution by snow shovel. That was the community standard where we lived on Summer Hill. I shudder to think what standard they enforced over on Winter Hill, a much tougher section of Somerville. Here on Capitol Hill, the standard seems to be, “Dig out your own space but when you venture out and then return, you may take an available space from some other guy who carefully dug his own.”

After my doctor’s appointment on Friday, we headed to Annapolis to attend the funeral of Dorothy Kraus, our friend Kathy Sitte’s mother. The simple Jewish service was held at the cemetery. The chapel where we gathered was colder than the sunny open air that afternoon.

Here was a woman who lived 91 years and only gave up driving about a month before she died. She had volunteered for years, into and well beyond traditional retirement age, visiting hospitals to bring comfort and assistance to women who were the victims of rape and domestic violence.

May I tell you about the beauty of a simple pine box? It fills me with comfort to imagine my remains carried into the earth in such a box, dissolving without fanfare, like a lozenge, into the earthly matter that is the stuff of our material creation. I’m doing everything in my power to put off that dissolution but the simple pine box remains a lofty ideal, though still too distant to be practical, too superficial to be frightening.

The funeral buffet was wondrous and copious. There was every kind of bagel with every kind of trimming, assorted fish pastes, pastas, noodle dishes, breads, cakes, cookies, and a proud grandson manning the bar. I ate so much it wore me out. Maybe this first day back on my feet had as much to do with it. On the other hand, if you really think so, you didn’t go back for seconds on the kugel or the raspberry coffee cake.

...and I in my cap. I don't care if the heat loss from the head thing is an urban myth. I'm not taking this thing off until the spring thaw is official.

I did not plan to write this post. I thought that I would avoid one inevitable side effect of my stem cell transplant chemotherapy. I was wrong. My hair was firmly rooted to my head for two weeks following the stem cell treatment. A couple of days ago my pillow started looking like a dog bed. Yesterday all the drains in the bathroom started filling up with hair. Today, the shower drain looked like a ratty goat skin rug had been thrown over it. I have acquired “the look.” It is not pretty by human standards. It’s closest natural counterpart is the wispy halo of hair sported by juvenile orangutans. I cannot wait to shave this wispy halo off my head.

I thought about chemotherapy hair loss when I first received my diagnosis in 2008 and was relieved to learn that chemo treatments for multiple myeloma don’t usually cause hair loss. That remained true throughout treatments in 2009.

Hair loss is a deeply personal experience, if I may venture an understatement. All of us have vanities. For me, born with a beautiful head of auburn red hair, that vanity was centered on my great coloring. I am lucky not to suffer from male pattern baldness. I suffer only from the fading and darkening of my youthful hair color. For experts (read fellow redheads) my earlier coloring is still perceptible. I was in my element in the 60s and 70s when my long hair reached down my back.

My famous up to no good San Francisco look from the golden age circa Dirty Harry 1, 2 & 3.

In subsequent years, red hair has always been an asset in my social life. It therefore came as a surprise that I did not have a particularly strong sense of loss when my hair began to fall out. It certainly helped that I had been forewarned with clarity of the certainty of the side effect. It was my own folly that I thought I might dodge the bullet. It did not hurt that I was already in my fifties surrounded by contemporaries who routinely shave their heads to remediate the traditional look of balding middle age.

I even get a kind of charge out of the prospect of seeing myself as a later day Kojak for a while. It helps most of all that I know my hair will grow back. What fools we mortals be. I wonder how it will regrow. Will it come back all white, in some freak change of life paroxysm? Will it be restored to its redder former shade? (Dream on.)

Do all of us who experience cancer go through the same deep thoughts? I have yet to mention the possible difference between men and women in confronting hair loss following chemotherapy. I recognize from deepest reaches of my own self esteem that hair loss for women is a bigger ball of wax, if I may be excused a second blinding understatement.

I’ve had girlfriends with breast cancer and have seen my share of turbans and other seven veils approaches to the transition. I want to believe it is better than it used to be as I see women unselfconsciously passing in and out of the cancer center showing uncovered bare heads. I would like to be that brave. However, I’ve already put out the call to friends that skull caps and their many uncles and cousins (no berets, please) are the perfect get well gift of the moment. I revel at the idea that I get to wear a hat indoors with impunity, a glorious innovation considering my newfound aversion to cold temperatures.

I am in only the first days of this new look. Considering the wealth of nurturing that I experience every day from my partner Ted, my friends and other family, I have no doubt that I will wear my new look with more pride than anything else. For those of you who are curious, I have included one snaphot of “the look” that I took this afternoon after my shower.

"He felt the gentle breeze blowing softly through his manly locks."

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